Marfan Support and
Information in NSW
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    Welcome to Marfan support and information in NSW




  • This website is a personal website


  • Links in light and dark green will take you to the particular locations.


  • pdf.files require Adobe Reader to be read.


  • Marfan Overview on a Power Point file - good for High School kids.






  • 22july10 - warning message from NMF re.coumadin 1 mg blister packs. See -
    Bristol-Myers Squibb and recall

  • The University of Sydney

    From NMF -
  • TAD (Thoracic Aortic Disease).

  • International Marfan Symposium September 2010 for scientists and clinicians/medical professionals - you can download the brochure about symposium there.
    @
    8th International Research Symposium on Marfan Syndrome
    “Advances in Pathogenesis and Treatment of Marfan Syndrome and Related Disorders”
    September 11-14, 2010
    Airlie Center, Warrenton, VA, USA


Noticeboard



  • Marfan Queensland. Meeting/AGM, incl.lunch, on Saturday 14aug10.

  • Marfan World E-News July 2010

  • Internet News

  • (for) kids

  • Revised Ghent Nosology per 1July10 (for Marfan diagnosis)

  • Publicity in Oz
  • Research and Donations

    Personal
    Tuttifrutti
  • Stad Amsterdam - the clipper. 24july10

    @@@

  • Marfan Trust UK- Newsletter Spring 2010


    July 2010

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    Marfan Support & Information in NSW
    © July 2010