Marfan Support and
Information in NSW
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    Welcome to Marfan support and information in NSW




  • Links in light and dark green will take you the particular locations.

  • pdf.files require Adobe Reader to be read.

  • Info on Marfan syndrome - go straight to about Marfan syndrome

  • re.online enquiry -
    Make sure you enter your e-mail address correctly and double check, otherwise the enquiry will be a waste of both your time and mine (but you could try again, with the correct address).

  • Discussion forum - you need to log in, done for your own privacy and my own peace of mind. Various Topics box has a search button. Keep keyword simple: scoliosis, atrial fib, lung, etc.

  • If you're just curious and one look is enough, you'll probably find your profile, especially with a minimum of details, will be deleted in a while. Most Marfan info/links is visible without logging in - see Index.

  • re.Community -
    If you registered and like to correspond, or, receive correspondence, please keep your email address up to date.





    @ This website is a personal website


Noticeboard

Words or names in green, either thin or bold, means link connections - click on them.



@

  • CME course on Marfan and Related Disorders, d.d.19july08, in Boston.

    @
    2july08
  • AGSA and Genetic Disorders Awareness Week Launch on 20August08 and celebrating the 20th anniversary of AGSA, in Sydney.

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    Health Issues
    page
  • Medical and Para-medicals

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    Newsletter Marfan Trust UK, Spring 2008 pdf.file, is out now.

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    About MarfanS includes page Marfan Support with contact details to other Marfan groups.
    Also includes the page -
  • re.Loeys-Dietz Syndrome

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    Resources and News -
  • NMF messages Boston NMF Conference
  • Internet News updates in June '08

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    July 2008

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    Marfan Support & Information in NSW
    © July 2008