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Welcome to Marfan support and information in NSW

This website is a personal website

- Links in light and dark green will take you the particular locations.
- pdf.files require Adobe Reader to be read.
- Info on Marfan syndrome - go straight to about Marfan syndrome
- re.online enquiry -
Make sure you enter your e-mail address correctly and double check, otherwise the enquiry will be a waste of both your time and mine (but you could try again, with the correct address). Forgotten your password and/or username ? the section online enquiry is quite handy.
- Discussion forum - you need to log in, done for your own privacy and my own peace of mind. Various Topics box has a search button. Keep keyword simple: scoliosis, atrial fib, lung, etc.
- If you're just curious and one look is enough, you'll probably find your profile, especially with a minimum of details, will be deleted in a while. Most Marfan info/links is visible without logging in - see Index.
- re.Community -
If you registered and like to correspond, or, receive correspondence, please keep your email address up to date.

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Noticeboard

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Cardiac Risk in the Young (CRY) and Fundraising Events (very interesting - in UK)
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22aug08
Fox News and "Michael Phelps Unintentionally Raises Marfan Syndrome Awareness" d.d.21aug08,
also see the NMF
9aug08
New resource on NMF. See Emergency Information Packet template
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Health Issues
page Medical and Para-medicals
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Newsletter Marfan Trust UK, Spring/Summer 2008 pdf.file, is out now and definitely worthwhile looking at.
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About MarfanS includes page Marfan Support with contact details to other Marfan groups.
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Resources and News -
Internet News updates in August'08
Publicity (Marfan) in Australia
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August 2008
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