Marfan Support and
Information in NSW
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online enquiry

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    Welcome to Marfan support and information in NSW




    This website is a personal website


  • Links in light and dark green will take you the particular locations.

  • pdf.files require Adobe Reader to be read.

  • Info on Marfan syndrome - go straight to about Marfan syndrome

  • re.online enquiry -
    Make sure you enter your e-mail address correctly and double check, otherwise the enquiry will be a waste of both your time and mine (but you could try again, with the correct address). Forgotten your password and/or username ? the section online enquiry is quite handy.

  • Discussion forum - you need to log in, done for your own privacy and my own peace of mind. Various Topics box has a search button. Keep keyword simple: scoliosis, atrial fib, lung, etc.

  • If you're just curious and one look is enough, you'll probably find your profile, especially with a minimum of details, will be deleted in a while. Most Marfan info/links is visible without logging in - see Index.

  • re.Community -
    If you registered and like to correspond, or, receive correspondence, please keep your email address up to date.





Noticeboard



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  • Cardiac Risk in the Young (CRY) and Fundraising Events (very interesting - in UK)

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    22aug08
  • Fox News and "Michael Phelps Unintentionally Raises Marfan Syndrome Awareness" d.d.21aug08,
    also see the NMF

    9aug08
    New resource on NMF. See Emergency Information Packet template

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    Health Issues
    page
  • Medical and Para-medicals

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    Newsletter Marfan Trust UK, Spring/Summer 2008 pdf.file, is out now and definitely worthwhile looking at.

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    About MarfanS includes page Marfan Support with contact details to other Marfan groups.

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    Resources and News -
  • Internet News updates in August'08

  • Publicity (Marfan) in Australia
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    August 2008

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    Marfan Support & Information in NSW
    © August 2008